Cystic fibrosis campaigners will gather outside the Dáil this lunchtime to hold a minute’s silence to honour those who have lost their lives to the disease.
Health Minister Simon Harris announced last night that the HSE has reached a deal with pharmaceutical firm Vertex to provide groundbreaking drugs to about 600 people suffering with CF in Ireland.
The drugs Orkambi and Kalydeco will be available from May 1st.
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CF patient Jillian McNulty has been campaigning for this for years – but regrets that it comes too late for those who have already died.
