An Ennis man, who is battling Huntingdon's Disease, has hit out at the government's decision to cut funding from a group which provides support to people with the condition.
1.2 million euro, which was shared by 25 charities, has been cut from a scheme operated by the Department of the Environment.
Ennisman Frankie Lundy, who was a well-known musician in the town for many years, was diagnosed with Huntingdon's Disease around three years ago.
His father is also battling the incurable condition.
The Lundy family, who have raised funds and awareness of the condition and the need for more services here, have now expressed anger at the decision to remove funding supports from a total of 25 charities, including the Huntingdon's Disease Association.
Other groups affected support sufferes of conditions including Multiple Sclerosis, Motor Neurone Disease and Alzheimers, as well as people with acquired brain injuries.
Their combined supports were 1.2 million euro.
Many of the groups have now gathered under an umbrella organisation, the Neurological Alliance – co-founder Orla Hardiman says the cuts need to be reversed.
In the Dáil last evening, the Taoiseach defended the cuts and told the groups that they can appeal.
Enda Kenny insists the coalition is committed to providing services.
However, while the door has been left open to an appeal, Frankie Lundy says he fears supports will be cut for him, his father and for hundreds of others battling life-limiting conditions.
He wants the money to be returned immediately, and for the coalition to be more aware of the impact of their decisions.
